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Ryan Dant

The Ryan Foundation for Rare Disease Research, United States
Patient Advocate
Ryan Dant is a long-time patient advocate diagnosed at the age of three with Mucopolysaccharidosis type 1 (MPS 1), a rare lysosomal storage disorder. When doctor’s predicted Ryan’s life to be cut short due to the disease, Ryan’s parents, Mark and Jeanne, spearheaded the funding for the first MPS Enzyme Replacement Therapy, Aldurazyme. Now 35 years old, Ryan is the longest treated person in the world with MPS I.

My Speakers Sessions

Monday, June 17
 

11:00am PDT

#105: The Intersection of Science, Ethics, and Participant Collaboration in Pediatric Rare Disease Product Development Room 17AB
 
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