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Mindy Cameron

Advocacyworks, United States
Patient Advocate
Mindy Cameron's evolution as a rare disease patient expert started over 20 years ago when her second son was diagnosed with Duchenne muscular dystrophy. Through her work with non-profit, research, and industry organizations, Mindy has become a recognized voice for patients living with rare conditions that can cause significant cognitive and mobility challenges. Mindy is a consultant at AdvocacyWorks and serves on several boards and advisory committees, including the Indiana Rare Disease Advisory Council and the Critical Path Institute's Duchenne Regulatory Science Consortium. She and her son have been continually participating in clinical research for over 17 years.

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