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Tuesday, June 18 • 4:30pm - 5:30pm
#282: Shame and Blame: Our Words are a Barrier to Clinical Research are a Care Option

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Component Type: Forum
Level: Basic
CE: ACPE 1.00 Knowledge UAN: 0286-0000-24-614-L04-P; CME 1.00; RN 1.00

Clinical research creates future clinical care. Let's lead in compassionate communication inviting more participation. Patient, site, and patient-focused drug development (PFDD) experts share and invite your participation in improving access through our words.

Learning Objectives

Identify the shame and blame negative words and phrases and their negative impact on patients; Recognize opportunities to improve the patient experience in clinical research as a care option through more compassionate word choice; Describe how to plan and justify optimization of protocol, informed consent, and participant communication language.

Chair

Lani Hashimoto

Speaker

Panelist
Jamie Troil Goldfarb

Panelist
Eddilisa Martin

Panelist
James Duhig, PhD


Speakers
avatar for Lani Hashimoto

Lani Hashimoto

Associate Director, Patient Engagement, Novartis Pharmaceuticals Corporation, United States
Lani Hashimoto is dedicated to connecting patients to research. Lani's lived experience as a clinical trial participant and caregiver further inspire her professional pursuits. She credits the Cystic Fibrosis Foundation as a key influence in her passion for patient engagement. At... Read More →
avatar for James Duhig

James Duhig

Global Head, Office of Health Literacy, AbbVie, United States
Dr. James (Jay) Duhig, Ph.D., is director of Patient Integration for AbbVie Pharmacovigilance and Patient Safety. Dr. Duhig is an expert in the application of human factors and health literacy in the investigation of medication errors and in the development of drug and device instructional... Read More →
JG

Jamie Goldfarb

Director, Patient Recruitment Strategy, Trialbee, United States
avatar for Eddilisa Martin

Eddilisa Martin

Co-Founder and Chief Executive Officer, M&B Sciences Inc., United States

Tuesday June 18, 2024 4:30pm - 5:30pm PDT
Room 15AB San Diego Convention Center 111 W Harbor Drive, San Diego, CA 92101 USA
  05: Patient-Focused Drug Dev, Forum